Access

Piper is in a controlled launch.

Accounts are created by invitation, one organisation at a time, so that we can sit with each one and find out whether the thing is actually useful before widening it. There is no self-serve signup, and that is on purpose.

Write to us

Tell us who you are, the disease or gene you work on, and — most usefully — the decision you are trying to make. That last part tells us in one line whether the substrate can help you yet, and we would rather say no than waste your time.

focena@focena.ai

Please do not include patient-identifying information. In an ultra-rare disease a variant combined with a few other details can identify a person on its own — send only what a colleague could read over your shoulder.

Before you write

Who this is for, and who it is not

The Terms of Service restrict the service to people 18 or older acting in a professional or research capacity. That shapes who we can give an account to.

Yes

Rare-disease foundations

Especially if you are deciding what to fund next and want credibility and impact assessed separately rather than blended into one score.

Yes

Academic and clinical researchers

Especially if you want to know what is already measured, what is genuinely open, and which single experiment would settle the most at once.

Not yet

Families, directly

We are not set up to serve individuals or families directly, and the terms do not currently allow it. What we can do is work through a foundation, which is how the plain-language material reaches the people it is written for.

What to expect

If we say yes

A conversation first. We want to understand the decision you are facing, and to be straight with you about whether coverage of your disease is deep enough to be worth your attention.
An account for your organisation. Your workspace is separate from every other organisation’s. Anything you put in stays yours.
The disclaimers, up front. Before reaching any surface you will be asked to read and accept what this is and is not — a research aid, never medical advice, with most content provisional. We would rather lose you at that step than after you have relied on something.

By using the service you agree to our Terms of Service and Acceptable Use Policy.

Research aid only — not medical advice. Piper is a research and educational aid. It is not medical advice, not a diagnosis, and not a clinical determination. Its output is hypothesis-generating and may be incomplete, provisional, or wrong, including AI-generated errors. Always consult your own qualified healthcare professional before making any medical or treatment decision.